There are people who didn't answer

There are people who didn't answer.

When I wrote this letter to tell our extended family and friends about the Batsman's diagnosis with autism, I wrote it from my heart. It took me days to craft the words until the Captain and I felt ok about them. We knew we didn't have the time or the emotional energy to have lots of different conversations with people to tell them about our boy. It was enough of a challenge to survive from the beginning of one day to the end. But we did want to tell people and tell them in a respectful and meaningful way. We wanted to give the people in our lives a small window into the journey we are travelling with our little boy. We wanted to be honest. We wanted to be real. We wanted to share with them how we are feeling as his parents. We wanted to give them information. We wanted to tell them that we are ok and that everything is going to be ok, maybe to convince ourselves as much as anything.

And so, I wrote the letter. We emailed it to our large extended families and our friends, people we see a lot and a little, people who are near and far. We sent it to everyone that we thought cared about us and about the Batsman. It was a big step to push send on that email and I had all kinds of feelings flood through me when that email would have been making its way into all those inboxes.

In the days after I sent that email, we received so many beautiful emails, letters and cards. Heartfelt, insightful, supportive and loving messages. Almost a month has passed since I sent the letter, a busy, crazy, chaotic month. This week it hit me.

There are people who didn't answer our letter.

Silence. No email. No phone call. No text message. Nothing.
It astonishes me that someone could receive a letter like the one we sent and just not respond. But mamas I know in the very beautiful baby lost community tell me that when they shared an event as massive as the death of their child with the people around them by letter or email, that this happened to them too. They shared their tragedy, their grief, the loss of their child while trying to work out how to take their own next breath... and there were people who didn't answer.

I don't understand. It makes me angry. I feel sad that we live in a world where people are unable, incapable or choose not to respond to someone sharing something significant to them, a loss, a diagnosis, a great challenge, a need...whatever that may be. The people who didn't answer our letter about the Batsman are not people in our closest, inner circle of friends. But they are people we will see in the weeks and months ahead. I don't intend to use energy beyond writing this post to think too much about this issue, but I am curious about what kinds of conversations we will have when we do see these people again.

Has this kind of thing ever happened to you? What did you do? How did you feel? Why do you think there were people who didn't answer?

I want to end this post on a positive note. We are so very grateful for the support we have received since I pushed "send" a month ago. We have many truly wonderful people in our lives. The Captain and I know that out there in our circle there is a great deal of grace, integrity, courage and love and we are so glad that our Batsman and Bowler get to grow up with that surrounding them.
xx

Comments

  1. I'm surprised and I'm not surprised. You learn so much about people, good and bad, when the shit hits the fan in your life.
    I'm sorry you were let down, just as I was.
    xo

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  2. I don't know it this makes anything any better, but sometimes when I don't know what to say, I say nothing. However, if someone close to me told me something so significant...I would force some words.

    I'm so glad you did get a lot of support.
    I'm still in the 'uncertain' phase...waiting to know what to do next.
    I can only imagine how difficult that email was for you. xx

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  3. Oh Suz. There were people who didn't answer when I expected them to. There were also people who answered that I didn't think would care.

    Sometimes, when something difficult or hurtful happens in your life, a different pattern emerges. People who you thought truly cared about you just vanish, replaced by other people you might have parted ways with for months or years. And I'm not sure how to account for the vanishing people, the gingerbread men I've heard all called in the NICU because they 'run, run as fast as they can' in the opposite direction from you when they see you on the street. I hope that they simply didn't know what to say or where frightened of saying the wrong thing and hurting us further.

    I'm glad that you did get support from the people closest to you and that you and your boys are surrounded by a lot of love.

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  4. It is a strange thing isn't it? And so hurtful too. It's hard to thank those who did answer when we wonder about those who didn't. Lots of love to you. xx

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  5. You really do find out who your true friends and family are when things get tough, whether its an illness in the family, baby loss, a challenge, etc. and its sad. Ive referred to that as taking out the "trash", as my dear friend Andrea puts it! Glad you got lots of support despite these non-responders. Hugs to you Suz...Nan xxx

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  6. Sometimes I think hard things are just too hard for some people.

    And as much as I feel sad for the lack of their support, I feel sadder for them. Because we all know the huge gifts that come with living a life with autism in it... the challenges are tough, but the rewards sure bring a lot of light with them.

    Your courage takes us all a long way.

    :)

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  7. What a great idea you had - to send a letter to all your family and friends, so well written and thought out as well. I never did and now many of our friends and family have different stories and just me gabbling to them whenever I see them. Often made harder as we live away from home - and now away from our second home ;-)

    I am with Thea - when I hear something and don't know what to say I often say nothing at all. There are some monumental moments in my life that I have neglected to say /write / do things that haunt me to this day. I am not trying to excuse anyone but just to let you know that some of the ones that didn't respond probably feel really crap about it.

    Am so glad I found your blog through a blog to blog exploration process this morning. I look forward to reading more.

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  8. I have to say that I am a bit like Thea. If I don't know what to say, sometimes I stay quiet. They say you find out who your true friends are in times of trouble. I hope things have settled for you over the past year and some of the 'silent' ones have shown support in other ways. Thanks for Rewinding x

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  9. I'm sorry to hear that. It is hard to send your thoughts and feeling and heart out and not get a response. I think bloggers know that best of all.

    Your blog is beautiful. You & MooZoo have done an amazing job.

    :: visiting from the rewind ::

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  10. I've read this post, and your letter. My heart goes out to you. This must be a difficult diagnosis to come to terms with.
    That said, I think there would have been times in my life when I wouldn't know how to respond to your letter. The person I am today - the mum with 3 little boys - would reach out to you and offer any help. In the past I probably would not have known what to say, and would have stayed silent.
    I think this is just part of your journey. I think dealing with this silence will give you more resolve to push forward with your boy's therapy, and in only surrounding your family with people who give you what you need. Everyone else is just background. I wouldn't dwell on it. You've got far more important things to deal with. Wishing you all the best. (Sorry for the essay :)

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  11. I can feel your pain in this post. I am so sorry that people were unable to respond. I'm sure it is not that they did not want to do so, more that they did not know how. So many people don't know how.

    Visiting from the Rewind.

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